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10月3日 Sue's StoryI remember the words the staff nurse said to me when she informed me that I needed 2 units of blood in a transfusion after the birth of my son in 1988 "Don't worry we've screened for AIDS" but at that time Hepatitis C wasn't recognised and therefore the blood wasn't screened for my nasty little virus. I never thought about it again.
Over the years I had experienced short periods of fatigue and nausea but I put it down to the stress of work and relationships (I was a single working mother). I just thought I was one of those sickly child type persons so I just tried harder and pushed myself more.
I was always at the doctors with one symptom or another and the answer to everything was pills and more pills....which is exactly what I didn't need.
For the past two years I had been suffering with joint and muscle pain, I had pains in my pains!! It got harder to move or be active. I had gone from having races with the kids and winning, to not having the energy to walk up the stairs...of course I thought the worst!
I suffered terribly with insomnia and regularly took medication to sleep. About a year ago I started having palpitations and I would be woken up at around 5am every morning with my heart thumping out of my chest! Things came to a head shortly after when I simply couldn't do my job, I couldn't even read a document let alone write one!
I eventually went to the doctors and the nurse sent me for an ECG, nothing showed up. They ran the usual blood tests but I expected nothing to turn up, as was usual. My GP asked me if I knew anyone with Hepatitis...I had no idea why...then she asked me to have another blood test for hepatitis as my liver function test was high. I thought it would be clear...I was so shocked when I was told that I was Hepatitis C Positive....it took a while to sink in.
I spent the next three months in my pyjamas with the headaches and migraines, I could hardly function and I didn't know if I was going to wake up each morning, I felt like my life was over...I wrote my will !
I was confused and even the simplest of functions became difficult I would get out of the bedroom at 4pm, watch tv and back in again at 8 pm. I spent most of my time on the internet (next to my bed) researching my newly diagnosed disease, I was living, breathing and exhaling it.
After that time my boss came to see me and gave me an ultimatum to get back to work so I went back part-time. It was difficult at first, five and a half hours seemed like a ten hour shift down the mine, exhausting but the mortgage has to be paid. I had kids, a house and responsibilities, I couldn't lay down and give up - I didn't have the time :-))
Slowly but surely I picked myself up, I had stopped any drinking completely and started to eat healthily and I researched the best supplements to take for my symptoms intead of conventional medicines.
Some days I feel great others pretty awful but now I know my limitations and try and stick to them. My sense of humour has returned and I have a wonderful life, newly married and I thank god for every day I have with my family.
I had my first consultancy in Liverpool this week and I am scheduled for a liver biopsy soon and have waited ten long months, but to be honest I think I needed that time to come to terms with my virus and to know it well. I am now very positive about the prognosis as I have approximately 80% chance of slaying my dragon as I am a genotype 2b. I am confident that I will !!!
I have gained some great information from newly found friends on the internet and from good sites like www.hepcuk.info and www.britishlivertrust.org.uk
So that's me for now
Keep the faith
Sue
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